Living Life with Cloacal Exstrophy

Growing up I never knew stomas came in different sizes. Having stomas I now know that its determined by how the surgeon can pull out the small intestine. I have a 3/4" size in my urostomy and a 1" size in my ileostomy. Did you know also that they can grow? Its scar tissue but it can grow and its sensitive and bleed heavilly. I remember growing up I would knick myself and I would bleed and I would panic. I would take some tissue and blot it. It still happens and it can

So I haven't written here in a few weeks, I have been dealing with a few things, and its kept me busy. I think moving forward I am going to give myself a schedule that way I can make sure I get stuff up here. I was thinking I would write a weekly story about my life and how I grew up, a post on my health stuff, and then just one about advice and what I do to live with my ostomies. I am not able to disclose what is going on becuase I don't even know what is going on. Also m

I launched this blog about a week and a half ago and I have just been hibernating. It snowed here in North Carolina last week and we had an ice storm the week before. I don't know I kinda took a mental vacation and I guess I needed it? I don't know, I turned 40 this year, and I usually am someone who believes that age is just a number. I don't try to be "hip" or anything but I do try and to be flexible and understanding about what is going on. For the first time though I

There is a looming snowstom in my area, this storm has been in the forecast since last week, and we were supposed to get some flurries. I never saw a single flurry but I did see we were set for a new winter storm. My wife says that a cold January means snow but I don't think thats true. I think its just cold and its January. Last year we got our snowstorm extremely late in the year for NC. This snowstorm has been interesting to watch, we went from getting anywhere betwee